“AI Won’t Cut Corners” A Hospital CIO and Community Advocate on the Digital Divide | McWilliams & Hicks
A hospital CIO and a nonprofit CEO on why the digital divide is a health divide and why AI won’t save us from what’s coming.
“We Signed Her Out Against Medical Advice.” It Saved Her Life | Tom Whitehead & Tori Lee
The father of the first child to receive CAR-T therapy signed her out against medical advice when doctors gave up — it saved her life; Patient #10 is now in college advocating for a therapy that 45,000 people are alive because of, yet only 20% of eligible patients can access.
I Had Bladder Cancer & Couldn’t Find a Clinical Trial. I Run Patient Recruitment! | Jim Kremidas & Elisa Cascade
The executive who created the first Patient Recruitment Department at Eli Lilly got bladder cancer, needed a clinical trial, and couldn’t find one — it took six points of contact to get enrolled, exposing why 80% of clinical trials fail to recruit enough patients.
“Pharma Is Not Coming.” Patient Groups Are Now Drug Developers! | Sunitha Malepati & Craig Lipset
A mother told to go home and love her kid after her daughter’s rare disease diagnosis founded a patient-led drug development organization; a former Pfizer clinical innovation leader is now her clinical lead — together they explain why pharma is not coming for 7,000 rare diseases and what patient groups are doing instead.
92% of His Bone Marrow Was Cancer — A Scientist’s Leukemia Journey | Jesús Zurdo
A drug discovery scientist diagnosed with Philadelphia-positive acute lymphoblastic leukemia — 92% of his bone marrow was cancer — shares what clinicians don’t tell patients about chemo brain fog, survivor guilt, and the stranger in Florida who paused his life twice to donate stem cells.
“I’m Lucky I Had the Network” — A Physician Becomes the Patient | Dr. Karla Loken
One month post-surgery for appendix cancer, a physician who led medical affairs at Hologic, Roche, and HerMD discusses survivor guilt, how her network got answers in hours that take most patients weeks, and what the system needs — navigators, translators, and retired physicians who still want to help.
We Mapped the Patient Journey. No You Didn’t
Why does patient journey mapping fail? What is denial fatigue? How do cancer patients navigate the system? Why is drug information inconsistent?